Dungog artist Roma Horton-Stevens will open her gallery to the public for the first time for a fundraiser for a rare disease with no cure.
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Wolfram Syndrome is a rare and terminal genetic disorder that affects 1 in 740,000 adults and 1 in 500,000 children with only 65% of patients living beyond 30 years.
Mrs Horton-Stevens’ grandson Ben Sheargold from Newcastle who is in his mid thirties started the Wolfpack Foundation to raise awareness and funding to help find a cure.
With no cure, only the symptoms can be treated which can include Insulin dependent diabetes, optical atrophy, neurological disorders, deafness and gastro-intestinal issues.
Ben was diagnosed with the syndrome at age 14 and lost his sight at age 21.
He will be a guest speaker at the exhibition’s opening night.
The exhibition sale fundraiser will be held at The Studio, 20 Common Road Dungog.
It will open on Friday May 12 at 6.30pm and continue on Saturday May 13 from 10am – 5.30pm and Sunday, May 14 from 10am -3pm.
Entry is by gold coin donation.
You can lean more about the Wolfpack Foundation and Wolfram Syndrome here.